The Fibroids Project is an online community and website dedicated to helping women become fibroid-free. Our mission is to be the resource both women and medical professionals leverage for information on all current programs, procedures and research.
Our Vision: We strive to be the leading national uterine fibroids informational website, connecting women to experts in all aspects of fibroid health. Learn More About Our Team.
How We’ll Get There: Our goal of becoming the one-stop destination for women diagnosed with uterine fibroids is coming to fruition. Finding information about fibroids can be a daunting task. At the Fibroids Project we provide all of the unbiased facts that we can find—from causes to cures—in one intuitively, easy-to-use place. We offer resources that not only address options for becoming fibroid-free, but also help women living with fibroids live the full and happy life they deserve. From seminars and websites to blogs and books, we gather information that arms patients and their families with the information they need to advocate for themselves and their loved ones. We then connect them to experts in the field and to each other to share knowledge, new points of view and support. Women diagnosed with fibroids, you are not alone!
How Did We Get Here? A Letter From Our Founder
In 2006, I was diagnosed with uterine fibroids. I went to my gynecologist with a pregnancy scare and I remember her feeling my belly and telling me, "Either you're pregnant or you have fibroids." Since I didn't want to be pregnant, I replied, "I'll take the fibroids." I would later regret that statement. At the time, I really had no symptoms of uterine fibroids. My belly poked out a teeny bit but I thought I was just getting fat. My periods had gotten progressively worse with cramps and heavy bleeding but I thought that was just a part of getting older. I did become nauseous and thought I was pregnant, hence my trip to the GYN. I later learned that nausea can be a symptom of anemia and anemia a symptom of fibroids. When my GYN told me I wasn't pregnant, I was relieved! But the second part of that conversation was her telling me I had uterine fibroids and needed to come back to her office to discuss them. I didn't even know what fibroids were and how they would eventually turn my life upside down.
The next trip to that GYN was interesting. Her recommendation was to have surgery to remove the fibroids. At that appointment, I was told I needed a Lupron shot to put me in a menopausal state to stop my periods from coming so I wouldn't lose blood and that would make surgery easier. She also said that I needed to schedule this quickly. My head was spinning. I couldn't understand how some benign tumors that weren't cancerous and didn't cause any pain would need to be removed just like that with no other options. I took the prescription for the Lupron shot and never went back to that doctor. The next few years became a quest to find information. I spoke with many friends, relatives, and other GYNs to find out what causes fibroids, why black women get them more often than other races, what my options were, and a list of other questions to determine my next steps.
As a woman diagnosed with fibroids, I, was constantly doing research on the causes and cures. I talked to many doctors and holistic professionals, attended informational seminars and consulted many websites, blogs, and books during my search. The way that I came into contact with these resources was mostly through word of mouth from other women who were diagnosed with fibroids. A lot of the information was invaluable and I would not have been privy to this information if I hadn't been vulnerable, told women my story, and then heard from them that they had a similar story or they knew someone who did. These women not only shared their personal stories, but information about seminars and websites as well.
After meeting with multiple GYNs and having various opinions on the next steps I should take regarding treatment, I finally found a doctor I could trust, my current GYN, Bernadith Russell, M.D. When my fibroids became progressively worse and more symptomatic (I developed severe anemia, had heavier periods with excruciating cramps, and an even bigger belly), Dr. Russell and I tried several methods to manage them. When nothing seemed to work, she too, recommended surgery. She encouraged me to do some research online and get additional opinions from other doctors. My friend and partner in this project, Nnamdi G. Osuagwu, witnessed how the fibroids were taking a toll on my quality of life. He provided me with two referrals, his sister Ngozi Osuagwu, M.D., Author of Letters to My Sisters: Plain Truths and Straightforward Advice from a Gynecologist, and her friend Dominique Delma, M.D. both GYNs. During my research, I found some websites - some disjointed, some contradictory, some outdated, and some were one person blogs telling one woman's story. He and I came to the conclusion that there should be a place where women can share their insight, learn about new procedures and act as a support system for one another… all without leaving their living rooms—hence, firboidsproject.com was born.